This weather has been awful and it is hard to be in a good mood with all the rain. Right now Ken and I are sitting in the lobby waiting for the rain to let up so we don't get too drenched!
Luke again is showing us that he is running the show. Yesterday the APN wrote that I could hold Luke but before I could get there to hold him, he started showing out. He dropped his oxygen level and they couldn't get it back up even after being suctioned and increasing his oxygen. The doctor put him back on the high frequency vent and turned his nitric up to 10. They stopped his feeding, started his morphine drip back, and did a bunch of tests to look for an infection. They gave him a bunch of sedation but he still was fighting the high frequency vent so they gave him vec- the paralytic. He was doing a lot better in the afternoon. The doctor is thinking he is starting to get an infection so they also started him on antibiotics. Today he is still doing good. He had a head ultrasound that was good and an echocardiogram that showed he still has mild pulmonary hypertension. They will repeat his echo on Monday. Lindsey (his girlfriend/nurse) and I decided that we had stopped giving him his pep talks so he decided to show out. He has had MANY pep talks the last couple days!
Jack is doing great. He has stopped having the heart rate drops and low oxygen levels since they increased his caffeine. The doctors have compressed his feedings and he is currently getting feeds every 3 hours. His feed run over an hour and half. The next step is to decrease the length of time they are running over. We got to start non-nutritive breastfeeding yesterday and he did really well. We get to practice once a day for now. He is wearing clothes all the time and doing well keeping his temp up. Most of the time he is a little warmer than normal. He gets that from me as I am very hot-natured. Ken and I are debating if his hair color is getting blond or red. I think red and Ken says blond. Only time will tell but he looks redheaded in the recent pics I have. I will post pictures tomorrow.
Time to see the boys. More later!
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