Baby boys update!

Ken has been doing the updates because I have been back to work and it has been busy. I am working nights and days so my schedule is different every week. This week I worked almost all nights because several people had been sick and nights were short staffed. My typical schedule is 2 days during the week and Saturday night. That allows me to be home with Jack most of the week and only need a babysitter 2 days a week. The other days I have spent taking Jack to his multiple dr appointments and resting and snuggling! Jack is growing so big and chubby. We have an appointment on Friday and hopefully we can get his oxygen off. Jack and Luke have both been cleared by the eye doctor and don't have to be seen again for 6 months. Both boys have passed their hearing tests and had normal head ultrasounds! Luke is doing great and slowly growing. He is down to 1/4 liter on his oxygen and the APN said his chest x-ray was the best he has ever had and his lungs look really good. Luke is up around 4 and 1/2 pounds but still growing very slow. He is still trying to learn to eat but doing okay on that. He is being fed by a therapist once a day and is taking about 20 mls of his 35 ml bottle. He is still having issues with swallowing and breathing. He sucks really good and loves his paci but when a bottle is in his mouth he doesn't know what to do with the milk! Several weeks ago the doctors did and echocardiogram on his hear and it was NORMAL!!! no pulmonary hypertension was seen!! That is a major improvement. He is having slight elevations in his liver blood test but they are giving him meds to help with that and a medication that helps prevent gallstones. He still needs to get his heria repaired but they won't do that until he is bigger. Ken and I are so ready for him to be home. We know life will be extra rough and busy but we are ready for that! We are so thankful that our boys have done so well and haven't had anymore complications than they have had. Luke has had a rough beginning and I am ready for his life to get a little easier. Thanks for all the prayers that have been sent up for our boys. God has blessed us and we are so thankful. I am sure there are going to be many obstacles that the boys will need to overcome but I feel that the major ones have been overcome and the boys have been victorious!! Keep praying for the boys and especially for Luke that he will learn to eat and that he will be able to come home very soon! Pray that Ken and I can figure out our finances so we can be with our boys as much as possible. Thanks to all our friends and the support and love you have given us.

Luke:


Jack: