Luke has been stable since his increase in oxygen yesterday morning. He pulled out his feeding tube in the morning and got a new one. They do x-rays to confirm that the tube is placed correctly, and this x-ray showed a small area of pneumothorax (collapsed lung). We were told it is hard to see, so it could have been there since Luke has been here or it could have developed from the high-flow oxygen he has been receiving. That may explain why he has had a hard time weaning off his oxygen.
We had a visit from the pulmonary team and they asked lots of questions, trying to rule things out and determine the best course of action. Luke had an EKG yesterday and today will have an echocardiogram and be tested for cystic fibrosis. I've heard of CF before, but spent the night learning more about it - terrified if that's what Luke has, but can't wait to have the test done and get the result.
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