Thursday, January 13, 2011

Luke is in the hospital again

Jack just gets no love. He is doing great, growing well, eating more and more, and is learning a few new words and sounds. He will put his left hand to his mouth - sign language for "eat" - but that's all he knows right now. It helps to keep him from screaming all the time, but that's all he does all day (because it seems like he is hungry all the time).

Luke had his appointment yesterday with the Medical Home clinic at the hospital. Even though he was sick for about a week around Christmas, he did gain some weight. He is gaining about 7 grams a day, which is better than the 5-grams/day that he had been averaging. This puts him in the range of normal weight gain for babies his age. It's still not enough, though - he needs 10-12 grams/day to do any catch-up.

It's not something we want to do, but we are ready for Luke to get a feeding tube. His speech development has dropped off compared to Jack (not saying or learning as many words) and continued delays can turn into big problems if he is not saying sentences and ready to start reading by school time... We have to have a consult with the surgeon and an upper-GI exam to check his esophagus and stomach, but normally the surgery will happen in 4-6 weeks.

Luke decided he misses the hospital too much - he had a very bad night and this morning we took him to the emergency room. When he really gets sick, he goes downhill fast. Last night at dinnertime he began wheezing and coughing a lot. At bedtime he had a breathing treatment, but needed two more to get through the night. By the morning he could not eat and was really having trouble breathing - our treatments and suction machine were still not enough to help.

He was admitted this morning and Rachel just left to go home and get some sleep. Luke is doing much better after the hospital's deep suction and much stronger breathing treatments. The symptoms are the same as his last hospitalization in October, but since we caught it fast and know exactly what he needs, we hope to only be here another day or two.









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