Music men...

We have been playing music videos in the mornings for the boys as Ken and I are drinking our coffee. One morning we were talking to the boys and I said "Cool boys sing, play the guitar and play the piano." Luke immediately went and grabbed the guitar out of the toy bin. Every morning since he has danced and played guitar. Jack and Luke trade between the guitar and the piano but by far Luke's favorite is the guitar!

Luke is doing great. Nothing really slows this boy down and he is one tough cookie! Friday he was supposed to take it easy so that he didn't bump his biopsy spot and cause bleeding to happen. Well he was all over the place jumping and running. He got really fussy before naptime so he got some pain meds...for a little pain and to help calm him down! That is the only time he has required anything.

Jack is great. He is moving up to the next class at preschool....not because he is necessarily ready but because the boys need to be separated! The jealousy and two year old attitude has really flared up in the last 2-3 weeks. We picked the boys up from school on Wednesday and asked how the boys did. Their teacher got an expression on her face that we both immediately knew....bad. we have had that expression many times. It is the frustrated and not knowing what to do with the boys behavior look. That night we talked about asking if they could be separated. It was nothing Ken and I had even really thought about before. We just thought they would be okay together. The more we talked about it and to other people we realized that they really need to be apart. I would be tired of spending 24 hours with the same person 7 days a week! Jack starts his new class on Monday and we are hoping to see an improvement in their behavior soon. Jack is going to see ENT next month as he constantly has had ear infections. Hopefully he can get tubes and feel better too. He just finished a round of antibiotics 2 weeks ago and I think he already has another infection. Luke has an appointment next week with ENT and we are hoping they can squeeze Jack in so we don't have to wait until the end of April for Jack to be seen.

Enjoy the videos!

Liver Biopsy done...

Quick post. It is amazing how just sitting around a hospital all day can make you so tired!

Luke did very well. He is home and resting good right now. We haven't had to give any pain meds but we have them if needed. He will have to stay home from school tomorrow and take it easy the next couple days.

The doctor said that with every test they want to run on his liver they had to take about 5 pieces..several more than they normally take. It will take several weeks to get results.

Thanks for the prayers and support. Hopefully this will be the last procedure he will have for a long time. We are praying for answers and a quick easy fix!

Prayers for Luke on Thursday

Just a reminder that Luke will have his liver biopsy Thursday morning at AR Children's Hospital.  The procedure should be quick, but he will probably spend most of the day at the hospital before being cleared to go home.  Please pray for a quick and easy recovery and that the results will give us some answers.

Luke's liver....

We had Luke's labs drawn and the liver enzymes were still elevated. Not worse but not better. We are going to have the liver biopsy done on March 8th at (around) 8:30. We were told that we would spend the majority of the day at ACH being monitored and should go home late afternoon. It will take several weeks before any results will be back.

Our prayer is two fold...we want healing but we want answers too. We are praying that the biopsy reaveals a diagnosis and then with that information he can be healed by God through the physicians. It had always been a struggle to WANT something to be found wrong with your child but scared at the same time of what could be.

Thanks for the prayers! We appreciate all the support and everyone that is standing in the gap for us and as always thanks to our prayer warriors who pray even when we don't ask!

Rachel

Valentine's Day

I am not a crafty person. I wish and dream of being the kind of person that can make an elegant amazingly beautiful chandelier from macaroni noodles but if I tried it would turn into a disaster ending up in the trash. And then Ken would be mad at me for spending money on items that ended up in the trash AND for wasting noodles!

Enter Pinterest.....I have tons of stuff pinned but I doubt I will even do a 1/3 of the items I have pinned. I have done 2 crafty items and several recipes. The crafts turned out well but the recipes are about 50/50 right now. Tonight I worked on the boys Valentine's day gift to their teachers and therapist. I am pretty proud of how it turned out! It will be filled with Hershey kisses and other candies. It was easier (and cheaper) to have a community gift than try to remember everyone and get each person an individual gift. (Christmas they all got their own gifts)

Here is my project.....

Blog Name....

Ken and I have been playing with the idea of doing our own web page but can never think of a name. We want to do it on several things--Tube Feeding products and ideas, Cooking for Rachel (trying recipes both gluten free and not), and Ken would be a blog about sports, baby shopping deals, and multiple other items. We want to know what you thing we should name the blog (the web address would be). We don't want our name in the address but it can be something about twins, stay at home dad, working mommy--basically anything but our name! The site would be totally separate of this site and updates on Luke and our family would still come here.
So...What do you think?

Make a comment to the post, Facebook message a name, text us (if you have our number), or email us.

Thanks!
Rachel

Feeding Tube Awareness week....

Make a video - it's fun, easy and free!
www.onetruemedia.com

Jack and Luke are about halfway through. The picture below is the one we used. I love my tubie and very proud to be his mommy!