Friday, October 23, 2009

One Month Old

I can hardly believe that my 2 little monkeys are one month old already!! It seems like it has flown by but also seems like the longest month ever. This week has been great. Ken's parents have been here all week and have really helped out with projects that we needed to get done. As I am sitting here all nice and warm typing this, Dick is outside in the cold and wind trying to finish as much painting as he can get done. He is painting the outside of the house and doing a fantastic job! Paula has cooked dinner for us, cooked us things to freeze, and cleaned. It has been very nice not to have to worry about dinner most of this week. She even rearranged and organized our garage one day because she "needed something to do!"

Dick and Paula have both taken turns holding Jack and he has loved it. He snuggles in and is so cute. Both boys have done really well this week. Jack is down to 1/2 liter of oxygen through his nasal cannula. The doctors are changing his feeding times everyday to try to get him closer to normal schedules. Right now his feeds run 7 hours and then are off for two hours. His tube was pulled back to his stomach a couple days ago and he has done well with that. He got his IV line out 2 days ago and he is doing good. One less line is great and it makes it a little easier to get him out of bed and mess with him.

Luke has done amazing this week. David Martindale came and prayed for the boys on Sunday. During the conversation he said this week was a week for miracles and I believe him. Luke at that time was on so much medication, on a vent that was basically the last resort to improve his lung status, on 100% oxygen, on 20 of nitric, his pulse ox was in the low 80's (90-100 is normal), and the doctors told us they were really worried about him. Every time the nurses, doctors or even me would touch Luke he would drop his heart rate and pulse ox very low and become very irritated. It would then take him a long time to recover and get back up to where he has previously been. Today--only 5 short days later--Luke is on a regular vent, off several of his medications, his sedation has been weaned, on 40% oxygen, on 10 of nitic, and his pulse ox is usually above 96% (unless he is wiggling or needing to be suctioned). He was started on breast milk feeding via a tube (TPT) that bypasses his stomach and goes into his bowels on Tuesday. He is at 0.5 ml/hour and tolerating that without any complications. He will stay on that for several more days before they will increase it any just to make sure that everything is working. He doesn't drop his heart rate or pulse ox when he is touched!! He is a different baby!! Hopefully I will get to hold him soon.

God has done so many miracles in our lives. This month has been full of up and downs. Several times we were close to losing Luke but the prayers of everyone rising up together have saved our little boy. Both are doing wonderful and I know that the only reason is because of the prayers, faith, and love that everyone has shown. I have cried out to God and He has listened and I praise His name for keeping the lives of my boys in His hands and for their healing. We ask for continued prayer as we still have a long journey and many hurdles to overcome. Thanks again for every prayer that you send up. To every person that sent the request to their churches, friends, and prayer groups--thank you too because one more person praying is another voice in the choir rising up to God.

Okay here is the fun part: Pictures!!!!

Here is sneak peak of the house:
Before:
During:

Grandparents holding Jack:




Luke pictures-on his cute blankets too!!:

Paula got to help hold/settle Luke when he got his feeding tube placed--he is holding her finger:


Jack has to gain some more weight before he is allowed to wear clothes all the time but on Thursday I knew his girlfriend...I mean nurse....Lindsey would let me dress him up! Today I put another outfit on him while Paula was holding him. I know that I am prejudice but isn't he SOOO cute in his little outfits!!! Jack and Luke are the cutest little babies in the NICU!!


Here is a picture on Jack getting his first water bath. This is the only picture I could post that did not show his boy parts!! The other pic is him snuggling with me after his bath.

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