I know it has been a while since we posted and I know many people have been asking and waiting for our update. Sorry. Ken and I have been busy and most night we are just plain exhausted!
Jack: He is doing great. Still on the oxygen by nasal cannula. He is on 2 Liter and 21% oxygen. 21% oxygen is basically what we normally breathe everyday. He is just needing the flow for his lungs right now. They have not weaned him for a couple days because they just want to take it slow. He is getting continuous feedings through a feeding tube that passes his stomach and goes into his intestines. They are not giving him feeding in his stomach yet and that is to prevent any reflux. They also do not want him to aspirate the feedings into his lungs if he does reflux. He is up to a whole 2 ml an hour. Ken and I get to hold him twice a day (an hour each). I take the daytime holding and Ken holds him when we go back in the evenings. He is opening his eyes a lot more and has a sweet little cry. He likes being held and stops crying as soon as he is settled against us!
Luke: He is on a roller coaster. Some days he is doing great and others are worse. He is still on isolation and getting antibiotics for his infection. The other night his blood gasses were not good at all and the doctors had to go back up on several ventilator settings and back up to 85% oxygen. He did better after the vent changes but they are going to go a little slower on weaning the settings. Today he down to 72% oxygen and they have not really changed much with his ventalator and he is still on 20% nitric (they had gone down to 15% last week but had to go back up on it too) The doctors did a repeat echocardiogram to make sure that is pulmonary hypertension was not back and the echo looked good!! He has received blood the last 3 days but they are checking his labs so often that he just isn't able to keep up with that loss. Even though he has had some bad days, he LOOKS better. He isn't as swollen and his color is a lot better. He is opening his eyes a little when we talk to him but he they keep him pretty sedated with medications.
They weighted each boy the other day and Jack weighted 2lb 8oz and Luke weighed 1lb 10oz. Luke is mostly fluid gain but gain is better than loss!! They will both have a head ultrasound tomorrow to make sure everything still looks good.
Ken and I took blankets to the boys last night. We got to bathe Jack and then we put a new blanket on his bed. We also go Halloween decorations to put on their isolettes. Luke will get a blanket on his bed the next time they change it. One of our friend's mom from church sewed the boys names on the blankets for us and also made really cute pillowcases (that will fit on their beds). We really appreciate that--THANKS!!
On the blog hits--we have 3 new places to add: Ukraine, United Kingdom, and Pakistan! I am amazed at how far spread our blog has gotten and how many people we don't even know are praying for us and the boys. Thank you to everyone who has been and continues to pray for us and the boys. I can see God doing great things in the boys lives and how He continues to heal them and me. I struggle a little on the days Luke is doing worse but I continue to pray for patience, peace, and direction. Even on the bad days I know that God is working and one day (it will get here sooner than we probably realize) we will have 2 healthy baby boys ready to come home!
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